Myself and my fiance, Connor are going to be taking part in the Crohn’s and Colitis UK Walk It (5K) in Edinburgh in July. As most of you know, I myself have Inflammatory Bowel Disease and so I am taking part to raise awareness for this illness and raise funds to help support the charity. Funds raised will go to Crohns and Colitis UK and this can help with providing support for those with IBD and also help the investigation into looking for a cure. This is a charity very close to my heart and I can’t wait to help raise awareness! If you could, please donate to my Just Giving page (I would be so grateful!)
Here is the information on #WalkIt if you are interested: https://www.crohnsandcolitis.org.uk/get-involved/walk-it
The money raised goes to Crohns and Colitis Uk and “This could help pay for 2,000 people to get the information they need about Inflammatory Bowel Disease.”
Thank you for reading and if you do donate or even share this post, I love you and am so very grateful for the support ❤
Love and Light,
Hey lovelies! So it’s been a while since I’ve posted on here. I wanted to just check in quickly and let you know I’ll be more active when I come home from my holiday (I’m currently in Tenerife and having an amazing time!) But I couldn’t let today go by without posting something for #WorldIBDDay. As you all know it is something very close to my heart as I was diagnosed in 2013 with Ulcerative colitis and my life has been changed in many ways since then. Ulcerative Colitis is one form of Inflammatory bowel disease; the other Crohns Disease. These illnesses are non-curable and can cause many symptoms such as bloody diarrhoea, nausea, fatigue, anaemia, stomach has cramps and pains, constipation and so much more.
I’m going to put links to all my posts I have written previously about Inflammatory Bowel Didease and my journey with it. I hope you’ll take time to read them and share or spread the word. We need to raise awareness for this invisible disease so as to help people suffering and those who are close to them.
A Support group for those with IBD
What I’ve learned from having an incurable illness
8 pieces of advice for anyone suffering with Inflammatory Bowel Disease
An Honest Letter to my illness
10 Things you need to know about Ulcerative Colitis
Colitis and Me
Fatigue and IBD
I hope this helps anyone suffering or having any symptoms and that it also creates understanding for those who don’t have IBD.
Thank you for reading and I’ll be back on the blog soon!
PS. there are some useful links and websites about IBD in this post here: Living with Ulcerative Colitis
People with Inflammatory Bowel Disease often suffer from fatigue. 2 out of 5 patients will struggle daily with fatigue even if they are in remission from the disease. Remission from IBD simply means that there are no/ have been no symptoms for a lengthy period of time.
What causes fatigue?
Fatigue can be caused by a number of factors including
- side effects of medications
- weight loss
- interrupted sleep
It is no wonder then that patients with IBD suffer from fatigue as a lot of these factors are linked to the disease.
What does fatigue feel like?
Fatigue can make you feel exhausted and cannot be helped by sleeping or resting. Fatigue is not just tiredness. It is so difficult to push through the fogginess and exhaustion and it can be mentally and physically taxing. This often leaves the person feeling weak, drained and worn out.
Symptoms of Fatigue
- brain fog
- feeling “heavy”
- sore or aching muscles
- muscle weakness
- impaired decision-making
- blurry vision
- low motivation
- poor concentration
- poor appetite
How Fatigue Has Affected Me
Fatigue is something that I have to deal with on a daily basis. I can sleep for hours and hours and still wake up feeling as if I haven’t rested. It’s horrible. I have spoken to my doctor about it but as there is currently not a lot of information on remedies for fatigue, I was told to eat more red meat to see if it would help. I can’t say that it made much difference. I have had to reduce my working hours down to part-time as working full time was too taxing for me. I currently work 5 hours and I can come home and have to sleep for the rest of the afternoon. The level of fatigue varies day-to-day and there are some days that are better than others. I find though that when I am not having an active flare-up, it does tend to be slightly lessened. During a flare-up the fatigue is horrendous and can be so bad that I have to lie down after taking a shower. It is such a difficult feeling to explain, it feels like a fogginess or a big cloud is hanging over you and pulling you down. It’s worse than just feeling tired, it is physically and mentally draining.
What I Do To Help Reduce My Fatigue
- Drink plenty of water
- De-stress! Take a long bath, do yoga, meditate etc
- Exercise, a little goes a long way.
- Eat lots of fruit and veg
- Take vitamins
- Sleep as often and as much as I can. Naps are everything!
These things do not get rid of the fatigue but they do make it a little more manageable.
I hope that there will be more research into fatigue and the link with IBD as currently around 80% of IBD patients suffer from it. We need a treatment or something to help reduce the symptoms so we can go about our every day lives with a bit of normalcy.
If you suffer from fatigue and IBD, you can log your symptoms here in order to help the research go further.
Here is Crohns and Colitis UK’s pdf about fatigue and IBD which I used for my research for this post.
Thank you for reading.
Love and light,
Dear Ulcerative Colitis,
When I first heard your name, I did not know what you were or how you would change my life. I had no idea of your magnitude. I thought you were something that would disappear with taking some pills. Little did I know, I was going to be stuck with you for the rest of my life.
What a crazy three years it has been since that day I first became aware of you. It hasn’t been the easiest or most glamorous of times. You have brought me so much pain, sickness, stress, anxiety and isolation from the world.
However, I do not blame you. I know that you appeared because I needed to learn how to take care of myself better. At the time, I was under so much emotional stress and I didn’t take care of my body or mind. You came to me with a message;
“You need to stop and slow down. You didn’t listen to the signals your body was sending you and so now I am here to push you into self-care and learning about your wounds.”
I am grateful for this, because without you I wouldn’t have begun this journey of self-love and healing.
I have come to accept that you are part of me and you are a constant reminder to listen to my intuitions about my body. However, that does not mean that I do not fear you. I am always worried about pushing too far and upsetting you. Our relationship will never be one of love but it does hold qualities of gratitude and acceptance.
Finally, I would like to thank you for pushing me to explore who I really am and find my authentic truth. I don’t hate you, not really.
I hope that one day we can be good friends and I will fear you no longer.