Walking for IBD

We did it!

The Crohn’s and Colitis UK #WalkIt went so well and it was such an incredible day. The sun was shining and the spirits were high. When we first got to Edinburgh, we noticed the bright purple tent through the trees and when we arrived to the area, it was like a sea of purple! It was so amazing to see how many people were there to support and raise awareness of Inflammatory Bowel Disease. There were lots of different stalls providing food, information and support. There was also an inflatable bowel which was awesome and had information throughout all about Crohn’s disease and Ulcerative Colitis.

To start off the walk, there were amazing dancers and live music for entertainment. It was a fantastic atmosphere that got everyone excited. During the walk, it was so lovely to have people coming up and asking what we were walking for and what IBD was. It felt so good raising awareness and being able to spread the word around the city of what IBD is and why awareness is needed. We took the wrong route and ended up doing almost 6K instead of 5K (oops!)

At the end of the walk, I felt really emotional that I had done it. I’m so glad that I felt well enough and had enough energy to go through with it. It was a bit overwhelming (in a good way) that so much effort was put into the day to raise awareness of these diseases that are so often misunderstood or unknown. We met some lovely people and it was nice to hear others stories of why they were there and their experience with IBD. I was so grateful for Connor being there with me. He is my biggest supporter and I am so thankful to have this wonderful partner who cares so much (sorry for the cheese!)

 

After the walk, we went for a Nando’s date which was so delicious! And then explored the shops around Edinburgh. We spent the rest of the afternoon relaxing in the cat cafe, Maison de Moggy. It was the best way to chill after the excitement of the morning.

 

 

Overall, the day was so incredible and I am so glad that we took part in the 5K. I am so grateful to everyone who donated and sponsored us as we have raised £240 for Crohn’s and Colitis UK. Thank you so much! I am hoping to fundraise more for CCUK in the future and I will keep you all updated.

Love and Light,

Rebecca xo

Raising Awareness of IBD and What You Can Do To Help

Raising Awareness of IBDHey everyone,

I just wanted to check in and say I am so grateful for all of the donations/ sponsors so far (if you missed my last post, I am taking part in a 5K walk to raise money for Crohn’s and Colitis UK) and it makes me so emotional to think how much support I have behind me. The money raised for Crohn’s and Colitis UK could help fund research for treatment and even a cure someday. Funds can help provide information and advice for over 1,000 people with Inflammatory Bowel Disease which is just incredible.

Crohn’s and Colitis UK Website

This charity was the first place I turned to when I was diagnosed. There are so many useful resources on there such as their Crohn’s and Colitis Companion which is an interactive resource that gives users information or advice on things like their symptoms, treatment options and how to live with IBD. This is really easy to use and so helpful for people who have just newly been diagnosed or anyone who needs a little support. There are over 40 leaflets and booklets available to download covering everything from financial aid to the symptoms of both conditions. It is so important to raise funds and donate as they use the money for incredible things like determining causes of IBD and the newest treatments. Recently £700,000 has been awarded for the research into new treatments and improved care for patients.

#WALKIT

#WalkIt is happening all around the UK. There is a 5K or a 10K that you can do or volunteer at. I am so excited to take part in the walk and to meet others with IBD. I think it is so amazing that we will all come together to support this amazing charity and each other. It is important to keep raising awareness of these conditions, being invisible illnesses, they can be so damaging to someones body, but at the same time give the appearance of being ‘well’.

It is amazing that more people are becoming aware and more understanding of chronic/invisible illnesses but there is still a long way to go.

The most important thing that anyone can do is to have compassion for others. We all have something going on in our lives, you never know what people are going through. Their lives may look perfect on social media but a smile and a filter can hide a lot. Every single person has their own struggles and it is important to keep that in mind every single day.

An Update on My Ulcerative Colitis

I am doing great at the moment; I haven’t had a flare in around 2 years. However that doesn’t mean that I feel healthy and fab every single day. There are still good days and bad days but my bad days are better now than the ones I used to have. The symptoms I’ve been having recently are some stomach cramps/pains (these tend not to come to anything and usually decrease) and fatigue. Fatigue is what I struggle with the most and it can be there even on the good days. I usually help this by resting as much as I can and trying to reduce my stress, although I fight a losing battle most of the time.

It can be hard some days to not let it get me down but I just have to pick myself up and keep moving forward. This is my life now and my UC isn’t going to stop me from living it to the fullest.

How You Can Help

You can help raise awareness of IBD by joining in the #WalkIt, donating or even just sharing this blog post. If you or your loved one has IBD, becoming more comfortable with the symptoms makes it easier to talk to others about them and thus raise awareness. The more we talk, the more recognised and accepted these conditons will become. I waited longer than I should have to get medical help as I was too embarrassed to tell my family. It is okay to talk about your bowel habits, every one has them! It’s normal and we need to get over the taboo of talking about poo.

Thanks for reading ❤

Love and Light,

Rebecca xxx

Colitis and Me

 

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As part of #CrohnsandColitisAwarenessWeek, crohnsandcolitis.org.uk has set up an option to create your own poster to spread awareness of the differences of IBD from person to person. This is my poster on how living with Ulcerative Colitis affects me and my life.

 

10 Things You Need to Know About Ulcerative Colitis

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1. Ulcerative Colitis (UC) is a form of Inflammatory Bowel Disease (IBD). The other main form of IBD is Crohn’s Disease. IBD is an autoimmune disease which means that the immune system attacks the healthy body cells.

2. Around 146, 000 people in the UK are living with Ulcerative Colitis.

3. UC causes inflammation and ulceration of the colon and inner lining of the rectum.

4. Symptoms can vary from person to person and can include; blood in stools, diarrhoea, severe abdominal pain, extreme fatigue, anaemia and severe weight loss in some cases.

5. There is no known cure.

6. Treatments for UC include immuno-suppressant medication or anti-inflammatory medication which aim to reduce the inflammation. There are many different kinds of medication for IBD such as steroids, injections etc and sometimes they do not always work, resulting in surgery. Surgery for UC includes the inflamed part of the colon being removed and an ostomy being created. This is when an opening in the abdomen is created to allow the intestines to go through and a bag is attached in order for the person to pass waste into. The surgery is usually only required for those with severe cases of UC.

7.  The cause of Ulcerative Colitis is unknown but researches believe it could be caused by a person’s genes, environment and the immune system reacting in an abnormal way to bacteria in the gut.

8. IBD is not the same as IBS. IBD is a disease and has no cure. It is a life-long illness whereas IBS is a syndrome and can be treated/controlled with medication or changes to the diet.

9. It is not just a pooping disease. There are many symptoms of IBD and not only that, there are many problems caused by having IBD such as joint problems, side effects from medication, mental health issues and much more.

10. People with UC/IBD often don’t look sick. This is because it is an invisible illness. This means that the person could look absolutely fine but be really struggling on the inside with severe symptoms and you wouldn’t be able to tell by looking at them. This is why it is so important that awareness is raised.

To help support research for a cure for IBD, please text CCAW22 £_ to 70070 and share this post.

This is a subject very close to my heart as you will know if you know me or follow my blog. I was diagnosed with UC 3 years ago and it completely changed my life. I want to be able to raise awareness as it something that I had never heard of until I was diagnosed and I hope that anyone struggling with symptoms has a loved one with IBD or has been newly diagnosed can find this piece helpful.

https://www.crohnsandcolitis.org.uk/

http://s3-eu-west-1.amazonaws.com/files.crohnsandcolitis.org.uk/Publications/ulcerative-colitis.pdf

Thank you for reading ❤

Rebecca xo