Walking for IBD

We did it!

The Crohn’s and Colitis UK #WalkIt went so well and it was such an incredible day. The sun was shining and the spirits were high. When we first got to Edinburgh, we noticed the bright purple tent through the trees and when we arrived to the area, it was like a sea of purple! It was so amazing to see how many people were there to support and raise awareness of Inflammatory Bowel Disease. There were lots of different stalls providing food, information and support. There was also an inflatable bowel which was awesome and had information throughout all about Crohn’s disease and Ulcerative Colitis.

To start off the walk, there were amazing dancers and live music for entertainment. It was a fantastic atmosphere that got everyone excited. During the walk, it was so lovely to have people coming up and asking what we were walking for and what IBD was. It felt so good raising awareness and being able to spread the word around the city of what IBD is and why awareness is needed. We took the wrong route and ended up doing almost 6K instead of 5K (oops!)

At the end of the walk, I felt really emotional that I had done it. I’m so glad that I felt well enough and had enough energy to go through with it. It was a bit overwhelming (in a good way) that so much effort was put into the day to raise awareness of these diseases that are so often misunderstood or unknown. We met some lovely people and it was nice to hear others stories of why they were there and their experience with IBD. I was so grateful for Connor being there with me. He is my biggest supporter and I am so thankful to have this wonderful partner who cares so much (sorry for the cheese!)

 

After the walk, we went for a Nando’s date which was so delicious! And then explored the shops around Edinburgh. We spent the rest of the afternoon relaxing in the cat cafe, Maison de Moggy. It was the best way to chill after the excitement of the morning.

 

 

Overall, the day was so incredible and I am so glad that we took part in the 5K. I am so grateful to everyone who donated and sponsored us as we have raised £240 for Crohn’s and Colitis UK. Thank you so much! I am hoping to fundraise more for CCUK in the future and I will keep you all updated.

Love and Light,

Rebecca xo

Fundraising for CrohnsColitis UK- 5K #WalkIt

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Myself and my fiance, Connor are going to be taking part in the Crohn’s and Colitis UK Walk It (5K) in Edinburgh in July. As most of you know, I myself have Inflammatory Bowel Disease and so I am taking part to raise awareness for this illness and raise funds to help support the charity. Funds raised will go to Crohns and Colitis UK and this can help with providing support for those with IBD and also help the investigation into looking for a cure. This is a charity very close to my heart and I can’t wait to help raise awareness! If you could, please donate to my Just Giving page (I would be so grateful!)

https://www.justgiving.com/fundraising/rebecca-crawford4

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Here is the information on #WalkIt if you are interested: https://www.crohnsandcolitis.org.uk/get-involved/walk-it

The money raised goes to Crohns and Colitis Uk and “This could help pay for 2,000 people to get the information they need about Inflammatory Bowel Disease.”

Thank you for reading and if you do donate or even share this post, I love you and am so very grateful for the support ❤

Love and Light,

Rebecca xxx

 

#WorldIBDDay 2017

Hey lovelies! So it’s been a while since I’ve posted on here. I wanted to just check in quickly and let you know I’ll be more active when I come home from my holiday (I’m currently in Tenerife and having an amazing time!) But I couldn’t let today go by without posting something for #WorldIBDDay. As you all know it is something very close to my heart as I was diagnosed in 2013 with Ulcerative colitis and my life has been changed in many ways since then. Ulcerative Colitis is one form of Inflammatory bowel disease; the other Crohns Disease. These illnesses are non-curable and can cause many symptoms such as bloody diarrhoea, nausea, fatigue, anaemia, stomach has cramps and pains, constipation and so much more.

I’m going to put links to all my posts I have written previously about Inflammatory Bowel Didease and my journey with it. I hope you’ll take time to read them and share or spread the word. We need to raise awareness for this invisible disease so as to help people suffering and those who are close to them.

A Support group for those with IBD

What I’ve learned from having an incurable illness

8 pieces of advice for anyone suffering with Inflammatory Bowel Disease

An Honest Letter to my illness

10 Things you need to know about Ulcerative Colitis

Colitis and Me

Fatigue and IBD

I hope this helps anyone suffering or having any symptoms and that it also creates understanding for those who don’t have IBD.

Thank you for reading and I’ll be back on the blog soon!

Rebecca ❤

PS. there are some useful links and websites about IBD in this post here: Living with Ulcerative Colitis

Fatigue and IBD

People with Inflammatory Bowel Disease often suffer from fatigue. 2 out of 5 patients will struggle daily with fatigue even if they are in remission from the disease. Remission from IBD simply means that there are no/ have been no symptoms for a lengthy period of time.

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What causes fatigue?

Fatigue can be caused by a number of factors including

  • anaemia
  • steroids
  • side effects of medications
  • dehydration
  • weight loss
  • anxiety/depression
  • interrupted sleep
  • pain

It is no wonder then that patients with IBD suffer from fatigue as a lot of these factors are linked to the disease.

What does fatigue feel like?

Fatigue can make you feel exhausted and cannot be helped by sleeping or resting. Fatigue is not just tiredness. It is so difficult to push through the fogginess and exhaustion and it can be mentally and physically taxing. This often leaves the person feeling weak, drained and worn out.

Symptoms of Fatigue

  • brain fog
  • dizziness
  • headaches
  • feeling “heavy”
  • exhaustion
  • sore or aching muscles
  • irritability
  • muscle weakness
  • impaired decision-making
  • blurry vision
  • low motivation
  • poor concentration
  • poor appetite

How Fatigue Has Affected Me 

Fatigue is something that I have to deal with on a daily basis. I can sleep for hours and hours and still wake up feeling as if I haven’t rested. It’s horrible. I have spoken to my doctor about it but as there is currently not a lot of information on remedies for fatigue, I was told to eat more red meat to see if it would help. I can’t say that it made much difference. I have had to reduce my working hours down to part-time as working full time was too taxing for me. I currently work 5 hours and I can come home and have to sleep for the rest of the afternoon. The level of fatigue varies day-to-day and there are some days that are better than others. I find though that when I am not having an active flare-up, it does tend to be slightly lessened. During a flare-up the fatigue is horrendous and can be so bad that I have to lie down after taking a shower. It is such a difficult feeling to explain, it feels like a fogginess or a big cloud is hanging over you and pulling you down. It’s worse than just feeling tired, it is physically and mentally draining.

What I Do To Help Reduce My Fatigue

  • Drink plenty of water
  • De-stress! Take a long bath, do yoga, meditate etc
  • Exercise, a little goes a long way.
  • Eat lots of fruit and veg
  • Take vitamins
  • Sleep as often and as much as I can. Naps are everything!

These things do not get rid of the fatigue but they do make it a little more manageable.

I hope that there will be more research into fatigue and the link with IBD as currently around 80% of IBD patients suffer from it. We need a treatment or something to help reduce the symptoms so we can go about our every day lives with a bit of normalcy.

If you suffer from fatigue and IBD, you can log your symptoms here in order to help the research go further.

Here is Crohns and Colitis UK’s pdf about fatigue and IBD which I used for my research for this post.

Thank you for reading.

Love and light,

Rebecca ❤

10 Things You Need to Know About Ulcerative Colitis

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1. Ulcerative Colitis (UC) is a form of Inflammatory Bowel Disease (IBD). The other main form of IBD is Crohn’s Disease. IBD is an autoimmune disease which means that the immune system attacks the healthy body cells.

2. Around 146, 000 people in the UK are living with Ulcerative Colitis.

3. UC causes inflammation and ulceration of the colon and inner lining of the rectum.

4. Symptoms can vary from person to person and can include; blood in stools, diarrhoea, severe abdominal pain, extreme fatigue, anaemia and severe weight loss in some cases.

5. There is no known cure.

6. Treatments for UC include immuno-suppressant medication or anti-inflammatory medication which aim to reduce the inflammation. There are many different kinds of medication for IBD such as steroids, injections etc and sometimes they do not always work, resulting in surgery. Surgery for UC includes the inflamed part of the colon being removed and an ostomy being created. This is when an opening in the abdomen is created to allow the intestines to go through and a bag is attached in order for the person to pass waste into. The surgery is usually only required for those with severe cases of UC.

7.  The cause of Ulcerative Colitis is unknown but researches believe it could be caused by a person’s genes, environment and the immune system reacting in an abnormal way to bacteria in the gut.

8. IBD is not the same as IBS. IBD is a disease and has no cure. It is a life-long illness whereas IBS is a syndrome and can be treated/controlled with medication or changes to the diet.

9. It is not just a pooping disease. There are many symptoms of IBD and not only that, there are many problems caused by having IBD such as joint problems, side effects from medication, mental health issues and much more.

10. People with UC/IBD often don’t look sick. This is because it is an invisible illness. This means that the person could look absolutely fine but be really struggling on the inside with severe symptoms and you wouldn’t be able to tell by looking at them. This is why it is so important that awareness is raised.

To help support research for a cure for IBD, please text CCAW22 £_ to 70070 and share this post.

This is a subject very close to my heart as you will know if you know me or follow my blog. I was diagnosed with UC 3 years ago and it completely changed my life. I want to be able to raise awareness as it something that I had never heard of until I was diagnosed and I hope that anyone struggling with symptoms has a loved one with IBD or has been newly diagnosed can find this piece helpful.

https://www.crohnsandcolitis.org.uk/

http://s3-eu-west-1.amazonaws.com/files.crohnsandcolitis.org.uk/Publications/ulcerative-colitis.pdf

Thank you for reading ❤

Rebecca xo

World IBD Day: Living with Ulcerative Colitis

 

Today is World IBD day. This is a day to raise awareness of two chronic conditions under the bracket Inflammatory Bowel Disease; Crohn’s Disease and Ulcerative Colitis. As you may know, I have Ulcerative Colitis and was diagnosed in May 2013. I take lots of medications daily to help control the symptoms and have had many hospital admissions. When I was diagnosed, I had never heard of ulcerative colitis which is why I think it is so important to raise awareness because there could be people suffering in silence. I hope that this will help anyone who feels that they are alone.

I want to share a couple of blog posts that I wrote previously about living with IBD with you today and I hope it will give you some perspective on what it is like to live with a chronic illness. I would greatly appreciate it if you took the time to read them.

MY BLOGS ON LIVING WITH IBD

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Transitioning From The Darkness To The Light. My Story.

The Support Group That Changed My Life. (And Exciting News!)

What I’ve Learned From Having An Incurable Illness.

You can help support  World IBD day by wearing something purple (the purple ribbon is used a symbol to represent IBD) and donating to Crohn’s and Colitis UK by texting PURP19 £(amount) to  70070 or by donating through the justgiving page linked below.

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Thank you for taking the time to read and I will list some helpful websites below in which you can learn more about inflammatory bowel disease.

Love and Light,

Rebecca xo