Fundraising for CrohnsColitis UK- 5K #WalkIt

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Myself and my fiance, Connor are going to be taking part in the Crohn’s and Colitis UK Walk It (5K) in Edinburgh in July. As most of you know, I myself have Inflammatory Bowel Disease and so I am taking part to raise awareness for this illness and raise funds to help support the charity. Funds raised will go to Crohns and Colitis UK and this can help with providing support for those with IBD and also help the investigation into looking for a cure. This is a charity very close to my heart and I can’t wait to help raise awareness! If you could, please donate to my Just Giving page (I would be so grateful!)

https://www.justgiving.com/fundraising/rebecca-crawford4

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Here is the information on #WalkIt if you are interested: https://www.crohnsandcolitis.org.uk/get-involved/walk-it

The money raised goes to Crohns and Colitis Uk and “This could help pay for 2,000 people to get the information they need about Inflammatory Bowel Disease.”

Thank you for reading and if you do donate or even share this post, I love you and am so very grateful for the support ❤

Love and Light,

Rebecca xxx

 

10 Things You Need to Know About Ulcerative Colitis

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1. Ulcerative Colitis (UC) is a form of Inflammatory Bowel Disease (IBD). The other main form of IBD is Crohn’s Disease. IBD is an autoimmune disease which means that the immune system attacks the healthy body cells.

2. Around 146, 000 people in the UK are living with Ulcerative Colitis.

3. UC causes inflammation and ulceration of the colon and inner lining of the rectum.

4. Symptoms can vary from person to person and can include; blood in stools, diarrhoea, severe abdominal pain, extreme fatigue, anaemia and severe weight loss in some cases.

5. There is no known cure.

6. Treatments for UC include immuno-suppressant medication or anti-inflammatory medication which aim to reduce the inflammation. There are many different kinds of medication for IBD such as steroids, injections etc and sometimes they do not always work, resulting in surgery. Surgery for UC includes the inflamed part of the colon being removed and an ostomy being created. This is when an opening in the abdomen is created to allow the intestines to go through and a bag is attached in order for the person to pass waste into. The surgery is usually only required for those with severe cases of UC.

7.  The cause of Ulcerative Colitis is unknown but researches believe it could be caused by a person’s genes, environment and the immune system reacting in an abnormal way to bacteria in the gut.

8. IBD is not the same as IBS. IBD is a disease and has no cure. It is a life-long illness whereas IBS is a syndrome and can be treated/controlled with medication or changes to the diet.

9. It is not just a pooping disease. There are many symptoms of IBD and not only that, there are many problems caused by having IBD such as joint problems, side effects from medication, mental health issues and much more.

10. People with UC/IBD often don’t look sick. This is because it is an invisible illness. This means that the person could look absolutely fine but be really struggling on the inside with severe symptoms and you wouldn’t be able to tell by looking at them. This is why it is so important that awareness is raised.

To help support research for a cure for IBD, please text CCAW22 £_ to 70070 and share this post.

This is a subject very close to my heart as you will know if you know me or follow my blog. I was diagnosed with UC 3 years ago and it completely changed my life. I want to be able to raise awareness as it something that I had never heard of until I was diagnosed and I hope that anyone struggling with symptoms has a loved one with IBD or has been newly diagnosed can find this piece helpful.

https://www.crohnsandcolitis.org.uk/

http://s3-eu-west-1.amazonaws.com/files.crohnsandcolitis.org.uk/Publications/ulcerative-colitis.pdf

Thank you for reading ❤

Rebecca xo

What I’ve Learned From Having An Incurable Illness.

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Those of you who have been following my blog or know me personally, know that I have a chronic illness, Ulcerative Colitis. Ulcerative Colitis is a form of Inflammatory Bowel Disease. There are two main forms of Inflammatory Bowel Disease; Crohns Disease and Ulcerative Colitis.

I am writing this post as 2 years ago this month was when I was admitted for my first hospital stay. It lasted 5 days and consisted of many tests, blood transfusions, x-rays, colonscopys and much more. It is an experience I will never forget and I want to raise awareness of these “Invisible Illnesses”.

Crohns Disease can affect the digestive tract from the mouth to the rectum whereas with Ulcerative Colitis, it it usually the colon that is inflamed.

Some symptoms of IBD/ things that can stem from it:

  • fatigue
  • abdominal pain or cramping
  • anxiety
  • depression
  • nausea
  • diarrhoea
  • constipation
  • anaemia
  • rectal bleeding
  • weight loss

Although the symptoms are very much physical, a lot of people forget (including doctors) about how this can affect your emotional and mental wellbeing.

With IBD, no one can see what is going on with you as it is all happening inside your body. This is what makes it so difficult for people to understand just how ill you can be as when you have IBD, mostly you don’t look ill. There can be days where I am in so much pain and so fatigued, yet you wouldn’t know it to look at me.

No two IBD journeys are the same, so what works for one person might not for another. Life would be boring if we were all the same! 

I know from speaking to people with IBD that it can be lonely and isolating, especially if you are having to go to the toilet 10 times a day! It can be frustrating and depressing and most of the time you wish you were normal and you curse your disease.

I want you to know though, that it is not all doom and gloom. There are periods of remission, where you feel good and things get better. It is all about being grateful for those good times and appreciating what you have.

I feel that having IBD has changed me as a person, I am stronger and I try not to take things for granted. I am not perfect and still have the days (sometimes weeks) where I get angry and I hate my body, but I have this disease for life so I need to make the most of it and live every day to the fullest.

Things that I have learned from having this disease:

  • There will be days when you can’t get out of bed. That’s okay. Rest as much as you can.
  • Don’t take your health for granted
  • Make the most of the good days
  • Love yourself during the bad ones
  • You are stronger than you think
  • Don’t push yourself too much
  • Don’t be afraid of speaking out about your symptoms
  • Not everyone will understand your struggle, don’t worry about them

To anyone who is suffering from any kind of digestive issue, I urge you please don’t wait to get seen by a doctor. They will be able to help and give you the right medication.

If you are interested in reading more about Inflammatory Bowel Disease, please check out this amazing book, “From The Inside Out” written by Matthew Williamson with excerpts from people with IBD (including me!)

Also, head over to Sophie McNaughton’s blog to read a heart-warming interview about a girl who has Crohn’s Disease and how she has developed a clothing line to raise awareness.

Thank you for reading and if you have any questions, please don’t hesitate to contact me.

Love and light ❤

Rebecca xo