Walking for IBD

We did it!

The Crohn’s and Colitis UK #WalkIt went so well and it was such an incredible day. The sun was shining and the spirits were high. When we first got to Edinburgh, we noticed the bright purple tent through the trees and when we arrived to the area, it was like a sea of purple! It was so amazing to see how many people were there to support and raise awareness of Inflammatory Bowel Disease. There were lots of different stalls providing food, information and support. There was also an inflatable bowel which was awesome and had information throughout all about Crohn’s disease and Ulcerative Colitis.

To start off the walk, there were amazing dancers and live music for entertainment. It was a fantastic atmosphere that got everyone excited. During the walk, it was so lovely to have people coming up and asking what we were walking for and what IBD was. It felt so good raising awareness and being able to spread the word around the city of what IBD is and why awareness is needed. We took the wrong route and ended up doing almost 6K instead of 5K (oops!)

At the end of the walk, I felt really emotional that I had done it. I’m so glad that I felt well enough and had enough energy to go through with it. It was a bit overwhelming (in a good way) that so much effort was put into the day to raise awareness of these diseases that are so often misunderstood or unknown. We met some lovely people and it was nice to hear others stories of why they were there and their experience with IBD. I was so grateful for Connor being there with me. He is my biggest supporter and I am so thankful to have this wonderful partner who cares so much (sorry for the cheese!)

 

After the walk, we went for a Nando’s date which was so delicious! And then explored the shops around Edinburgh. We spent the rest of the afternoon relaxing in the cat cafe, Maison de Moggy. It was the best way to chill after the excitement of the morning.

 

 

Overall, the day was so incredible and I am so glad that we took part in the 5K. I am so grateful to everyone who donated and sponsored us as we have raised £240 for Crohn’s and Colitis UK. Thank you so much! I am hoping to fundraise more for CCUK in the future and I will keep you all updated.

Love and Light,

Rebecca xo

Raising Awareness of IBD and What You Can Do To Help

Raising Awareness of IBDHey everyone,

I just wanted to check in and say I am so grateful for all of the donations/ sponsors so far (if you missed my last post, I am taking part in a 5K walk to raise money for Crohn’s and Colitis UK) and it makes me so emotional to think how much support I have behind me. The money raised for Crohn’s and Colitis UK could help fund research for treatment and even a cure someday. Funds can help provide information and advice for over 1,000 people with Inflammatory Bowel Disease which is just incredible.

Crohn’s and Colitis UK Website

This charity was the first place I turned to when I was diagnosed. There are so many useful resources on there such as their Crohn’s and Colitis Companion which is an interactive resource that gives users information or advice on things like their symptoms, treatment options and how to live with IBD. This is really easy to use and so helpful for people who have just newly been diagnosed or anyone who needs a little support. There are over 40 leaflets and booklets available to download covering everything from financial aid to the symptoms of both conditions. It is so important to raise funds and donate as they use the money for incredible things like determining causes of IBD and the newest treatments. Recently £700,000 has been awarded for the research into new treatments and improved care for patients.

#WALKIT

#WalkIt is happening all around the UK. There is a 5K or a 10K that you can do or volunteer at. I am so excited to take part in the walk and to meet others with IBD. I think it is so amazing that we will all come together to support this amazing charity and each other. It is important to keep raising awareness of these conditions, being invisible illnesses, they can be so damaging to someones body, but at the same time give the appearance of being ‘well’.

It is amazing that more people are becoming aware and more understanding of chronic/invisible illnesses but there is still a long way to go.

The most important thing that anyone can do is to have compassion for others. We all have something going on in our lives, you never know what people are going through. Their lives may look perfect on social media but a smile and a filter can hide a lot. Every single person has their own struggles and it is important to keep that in mind every single day.

An Update on My Ulcerative Colitis

I am doing great at the moment; I haven’t had a flare in around 2 years. However that doesn’t mean that I feel healthy and fab every single day. There are still good days and bad days but my bad days are better now than the ones I used to have. The symptoms I’ve been having recently are some stomach cramps/pains (these tend not to come to anything and usually decrease) and fatigue. Fatigue is what I struggle with the most and it can be there even on the good days. I usually help this by resting as much as I can and trying to reduce my stress, although I fight a losing battle most of the time.

It can be hard some days to not let it get me down but I just have to pick myself up and keep moving forward. This is my life now and my UC isn’t going to stop me from living it to the fullest.

How You Can Help

You can help raise awareness of IBD by joining in the #WalkIt, donating or even just sharing this blog post. If you or your loved one has IBD, becoming more comfortable with the symptoms makes it easier to talk to others about them and thus raise awareness. The more we talk, the more recognised and accepted these conditons will become. I waited longer than I should have to get medical help as I was too embarrassed to tell my family. It is okay to talk about your bowel habits, every one has them! It’s normal and we need to get over the taboo of talking about poo.

Thanks for reading ❤

Love and Light,

Rebecca xxx

20% OFF at My Etsy Shop!

Use the coupon code 20OFF  at my Etsy shop for some lovely handmade, personalised prints and quotes. They make a lovely gift for those special people in your life, including yourself!

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Beauty Print- £2.50
A handmade print using ink and pastels. Lovely inspirational quote to remind you to remember the beauty in the world.

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Name Print- £2.50
*CUSTOMISED* print with words to describe the person. Can be customised for anyone. Great gift for Christmas, birthdays, thank yous etc. I made this for my cousins birthday

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Button Print- £5.00
A lovely handmade print fantastic gift for loved ones. This one was created for my gran’s 60th birthday which is why it is personalised. Customised prints available on request.

Great gift for;
Birthdays
Celebrations
Anniversaries
Special Occasions

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Self Care Print- £3.00
This is a list of things/ideas that you can do to take care of yourself and things to make you happy. If you need to make more time for yourself, this is a PERFECT reminder!

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Live In The Light Print-£2.50 This is a beautiful, colourful board with all of the words that describe living in the light. It is ideal for gifts or to hang up on your wall as a daily reminder to live in the light il_570xN.983579094_6ada

Be Gentle With Yourself Print- £2.50
A reminder to take care of yourself and allow yourself to have some time off to chill and relax. Self-care is so important!

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Little Bag of Miracles- £5.00
The little bag comes with a card explaining what it’s all about. They can be gifts for
-loved ones
-someone sitting exams
-a friend in need
-a pick me up for yourself
-someone struggling with a loss
-mother’s day
-birthdays
-christmas

-and much more!

I am taking personalised orders! *Quotes in each bag may differ.*

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Family Print- £2.50
This is a lovely print to give to any member of your family as a gift. I gifted these to my family for Christmas and they adored them! I am also going to be taking requests for personalised orders and I will be selling some with frames upon request for a higher price.

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Lessons Print- £1.50
A perfect reminder that there are lessons in every situation in life. If there is something that keeps coming up for you, there is still some work to be done. Be patient and open to receiving these lessons♥

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Let Go Print- £1.50
Take a deep letting go breath, hold for 5 seconds and let it go.

Doesn’t that feel better already?

Let go of those limiting beliefs. Let go of the negative thoughts. Let go of the past. Let go of the blocks holding you back. I promise that if you use your breath and take time to relax your body and mind, you will be able to release negativity more efficiently. So what are you waiting for?

Inhale, Exhale and Let Go!

You can hang this print on your wall as a daily reminder to let things go!

Go on, treat yourself at https://www.etsy.com/uk/shop/LiveInTheLightShop

Love and light,

Rebecca xo

21 Things I’ve Learned In 21 Years

 

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1.  It is so important to love yourself fully and completely.

2. You have to put yourself first sometimes and allow yourself to be selfish.

3. It is okay to say “No” to things you don’t want to do.

4. Every single feeling you have is okay.

5. When you think more positively, you will begin to feel better.

6. Eating healthily really does make you feel better.

7. Family is everything. Spend as much time as you can with them. You will be thankful for it later on.

8. Gratitude for the little things is so important.

9. Nature is extremely powerful; a 5 minute walk can change your mindset.

10. Things always get better with time.

11. Every day is a new chapter of your journey.

12. It is okay to not be okay. No one is perfect and no-one has a flawless life. You are doing great.

13. You cannot help others if you don’t help yourself first.

14. Stress really can have detrimental effects on your health.

15. You are not alone in your struggles. Reach out to others for help and advice or even just someone to vent to. Trust me, it helps.

16. Feel The Fear And Do It Anyway.” Nothing is as scary as you may think and you can do anything you put our mind to.

17. It is not healthy to compare yourself to others. Everyone is unique. You are beautiful the way you are.

18. Trust your gut and believe in what your intuition is telling you.

19. You are not defined by your illness.

20. Everything happens for a reason and there is a lesson in every experience.

21. You are enough.

 

8 pieces of advice for anyone suffering with Inflammatory bowel disease

The Disclosed

I am Rebecca, I’m 21 years old and was diagnosed in May 2013 with Ulcerative Colitis. 

Ulcerative Colitis is a form of Inflammatory Bowel Disease. There are two main forms of Inflammatory Bowel Disease, those being Crohn’s disease and Ulcerative Colitis.

Crohns Disease can affect the digestive tract from the mouth to the rectum whereas with Ulcerative colitis, it it usually the colon that is inflamed.

Although the symptoms are very much physical, a lot of people forget (including doctors) about how this can affect your emotional and mental well-being.

With IBD, no one can see what is going on with you as it is all happening inside your body. This is what makes it so difficult for people to understand just how ill you can be as when you have IBD, mostly you don’t look ill.

There can be days where I am in so much pain and so fatigued, yet…

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Girls Weekend in Edinburgh!

Last weekend, I went away for the weekend with my best friends, Samantha and Lisa. I have never done anything like this apart from going to London a couple of years ago with a big group of friends. I’ll be honest, I was feeling a little nervous about being away from home without my partner as the whole 3 years we have lived together, the only time I have stayed away overnight was when I was admitted to hospital for 4 nights! I can now say that I am so glad I went as it was such an amazing experience! I love spending time with my partner but having a whole weekend of girl time with my besties was just what I needed.

Saturday

We drove down on Saturday afternoon around 3pm. It was a lovely drive and was great just chilling listening to some tunes while planning what we were going to do when we arrived. When we got into Edinburgh, we found my friend’s flat that we were going to be staying in and parked the car. We then got a bus into the centre and hit the shops. We walked along Princes Street and I bought a beautiful black velvet crop top for going out that night and Samantha bought a stunning new pair of heels. We then went for the yummiest Nandos ever and then got a bus back to the flat. We spent the next couple of hours doing our hair and makeup. We got the bus into town and went to some pubs before heading to the club. I have never been a big fan of clubs due to them being so busy and that makes me anxious but I am so proud of myself for handling it so well and not getting anxious at all while being in there! It was a brilliant night, we had so much fan dancing and just enjoying ourselves. On the way home, we went to an all night bakery (how amazing!?) and got a delicious steak pie each and got home about 4am.

Sunday

Surprisingly, we weren’t hung over the next morning and went to Nandos for some brunch. We then picked up Lisa from the station and headed into town to go to the cat cafe. To kill some time first, we went to see Grey Friar’s Bobby grave and it was so interesting to walk through the graveyard and read about the history of the place. The cat  cafe was honestly the most amazing experience. We had to take our shoes off when we went in and there were cats everywhere! A little sleepy bengal cat was on the couch and the other cats were lying on the chairs, floor, beds etc. They have actual mini beds for the cats to sleep in! There are lots of toys you can use to play with the cats and there are also lots of hiding places for them to go. We ordered some cake and tea and sat down at a table. A little sphinx cat jumped on my knee and made a grab for my cake! She was so cute and determined she was getting some cake! We were also given some treatsand it was so amazing becuase all the cats came out, (even ones we hadn’t seen yet) to get some! I felt so relaxed and chilled out and the atmosphere was lovely. If you are a fan of cats, definitely go check it out. Their website is http://maisondemoggy.com/.

I will be going back for sure! I took loads of pictures but I will include the best ones here.

That evening, we went a walk along the streets and watched some free entertainment as the festival was on so there were many exciting things happening. And we finished the night off by cosying up in our pjs with some wine and a movie.

Monday

This was our last day so we wanted to spend it doing something really fun. We spent the day at the zoo which was fantastic! It was such a sunny day and we loved walking around seeing all the different animals. The meerkats and the penguin parade were my favourites! I’ll include some pictures so you can have a nosy at what our day was like. (Credit for osme of these pictures go to my friend Samantha, yes I stole some shh!)

Overall, the weekend was fantastic and I am so proud of myself for stepping out of my comfort zone and so grateful that I got to spend the weekend with my best friends!

I hope you enjoyed a little insight into Edinburgh and thank you for reading!

Love and light ❤